This essay argues that what distinguishes a negatively valenced phenomenal experience from suffering is an ability to make meaning of the experience. In this sense, intellectual ability influences the extent and nature of suffering. But this connection is not a straightforward one, since intellectual ability cuts both ways. On the one hand, those with higher levels of intellectual functioning are better able to make meaning of negative experiences, thereby reducing their suffering. On the other, intellectual ability can influence the depth and breadth of one’s negative experiences, thereby increasing suffering. This means that we cannot make any assumptions about a person’s susceptibility to suffering based on their level of intellectual functioning alone.

In a recent think piece for the new-music media site I Care If You Listen, the London-based writer and director Jessica Bailey advocates for accessible notation practices in classical-music pedagogy (‘Earned, Not Learned: How Classical Music Notation is Not Built for Neurodivergent Students’ https://icareifyoulisten.com/2024/06/classical-music-notation/ (18 June 2024)). As an avid pianist with Nonverbal Learning Disorder, Bailey finds numbers and symbols more challenging than words and letters, and she recounts how forbidding conventional music notation was for her. Bailey developed her own workarounds, but advanced music study was essentially off limits. She now wonders what doors might be opened to her and other neurodivergent musicians through even small adjustments to notation systems. Drawing a connection between the accessible pre-grade piano-method books of her childhood and modern digital solutions like Lime Lighter and the Odla tactile console, Bailey ponders how notation technologies might help us ‘reimagine and re-programme the sheet music model’.

The objective of this study was to investigate the impact of common mental disorder (CMD; depression/anxiety) symptoms and risky substance use in people with epilepsy in Ethiopia (four districts) on quality of life (QoL) and functioning over 6 months. A prospective cohort study was carried out. Multivariable linear regression followed by structural equation modelling (SEM) was employed. In the multivariable regression model, neither CMD symptoms (β coef. = −0.37, 95% confidence interval [CI] −1.30, +0.55) nor moderate to high risk of alcohol use (β coef. = −0.70, 95% CI −9.20, +7.81) were significantly associated with a change in QoL. In SEM, the summative effect of CMD on QoL was significant (B = −0.27, 95% CI −0.48, −0.056). Change in functional disability was not significantly associated with common mental disorder (CMD) symptoms (β coef. = −0.03, 95% CI −0.48, +0.54) or with moderate to high risk of alcohol use (β coef. = −1.31, 95% CI −5.89, 3.26). In the SEM model, functional disability was predicted by both CMD symptoms (B = 0.24, 95% CI 0.06, 0.41) and seizure frequency (B = 0.67, 95% CI 0.46, 0.87). In this rural Ethiopian setting, co-morbid CMD symptoms and seizure frequency independently predicted functional disability in people with epilepsy.

The story of Mary and Martha is a “text of terror” for women and the mentally disabled, elevating Martha as emblematic of the spiritual failure of the anxious woman. While scholarship has focused upon the precise nature of Martha’s work, this article argues that whether Martha was in the kitchen or doing ministry, she was doing servile labor and incurring the “slavish” worry associated with such work. Attention to the socio-economic context of Martha’s worry recenters the labor dispute that is at the heart of this short passage. Rather than naturalizing ancient norms about worry or continuing to use the disabled body as something to “think with,” this article contextualizes Martha’s “worry and distraction,” demonstrating the ties between the female body, worry, anxiety, and enslaved labor in antiquity. Martha’s worry is a disability that is manufactured by unjust labor structures that purposefully assign worry to some bodies and not others.

Affordable, good quality childcare creates opportunities for many parents to better reconcile work and care or reduces family care to enable other valuable contributions to society. However, childcare studies often overlook parents of children with additional or complex care needs. These parents spend a greater amount of time on caregiving, providing care that goes beyond that of parents of typically developing children. As such, their opportunities beyond caregiving can be limited. Resources, like childcare services, can be crucial in supporting the reconciliation of care with other valued activities in life. This article contributes to the cross-national childcare policy literature by conceptualizing comparative indicators to assess the availability, accessibility, and affordability of childcare policy design for children with additional or complex care needs. It then applies these indicators to a comparison of childcare policy design in England and the Netherlands, providing an operationalization for further empirical analysis.

The introduction of portable MRI (pMRI) has the potential to directly impact dementia research and ultimately clinical care. In this paper, we explore two ethical challenges facing the introduction of pMRI in dementia research. The first is the need to ensure that pMRI enhances rather than undermines efforts aimed at improving ethnoracial representation in dementia research. The second is the need to implement pMRI in dementia research in a dementia-friendly way that attends to the social context and lived experience of people with dementia.

Employment rates of people with and without disabilities differ substantially in most countries, and policymakers have tried, with mixed effects, to reduce this gap through different policy measures. However, studies show that governance and managerial reforms also affect implementation of policy. In this study, we examine how the Danish large-scale administrative reform of 2007 has affected the role and structure of the approach of the public employment system (PES) to unemployed people with disabilities. Using Pollitt and Bouckeart’s framework on reform effects, we report on a document analysis of policy papers and a 2019 survey of caseworkers and disability keypersons (N = 453). The analysis identifies few and vague objectives on a process and systems level, with the overall goal being more coherent service delivery. Specifically, a new division of tasks between the state and municipal level was established, including the creation of a disability keyperson at the municipal level to inform and guide job centre colleagues in assisting unemployed with disabilities. In practice, most of the keypersons were doing administrative casework and placed in sections focussed on unemployed with a reduced work ability. Hence, we identify a mismatch between objectives and implementation, questioning whether service delivery has become more coherent.

Introduction: Frailty is a common condition among older individuals and is associated with increased vulnerability to adverse health outcomes. The COVID-19 pandemic has further highlighted the impact of viral infections on frail individuals.

Objectives: This study assessed the functional and clinical analysis changes in frail patients before and after SARS- CoV-2. This study evaluated the functional and clinical changes in frailty patients before and after SARS-CoV-2 infection in a cohort of 20 frailty patients of a long-stay facility.

Methods: Demographic, clinical, and functional data, including the Barthel index, Katz index, and Mini-Mental Examination, were collected. Clinical analyses were also conducted, including a complete blood count and biochemical profile. The functional and clinical analyses were compared before and after SARS-CoV-2 infection using t-tests. Pearson’s correlation was used to analyze the relationship between functionality, frailty, and clinical biomarkers.

Results: The cohort had a mean age of 84 ± 2.42 years, with 80% female. The most common comorbidities were Arterial Hypertension, Diabetes Mellitus type II, and Alzheimer’s disease. The functional assessment showed a significant increase in functional dependence on basic activities of daily living after the SARS-CoV-2 infection. Significant differences were also observed in grooming, bowel, and bladder control. Clinicals biomarkers, such as albumin, showed substantial changes post-infection.

Conclusions: The findings indicate worsening functional dependence and changes in clinical biomarkers after an illness. These results emphasize the need for targeted interventions and support for frail individuals during viral outbreaks. Further research is warranted to explore the long-term consequences of COVID-19 on frailty and develop strategies to mitigate its impact.

This study explores the impact of vulnerability appeals during the COVID-19 pandemic using a nationally representative, preregistered survey experiment (N = 4,087) conducted in mid-2021. We explore whether providing citizens with information about the vulnerability of ethnic minority and disabled citizens to COVID-19 fosters empathy and increased support for behavioral restrictions. We observe minimal statistically significant or substantive effects, although the presence of subtle effects cannot be entirely ruled out. We identify some limited indications that individuals with disabilities exhibit increased support for restrictions when exposed to information about the vulnerability of disabled people to COVID-19, but these effects are inconsistent. Therefore, our findings provide limited evidence to confirm or rule out that using vulnerability appeals alone is effective for influencing public attitudes toward behavioral restrictions. The findings point toward avenues for future research, including a closer examination of heterogeneous responses to public health messaging among population subgroups.

Successful employment outcomes are often beyond the reach of people with disabilities, but relatively little is known about the factors that best enable the achievement of this goal. Using survey data from 803 people with and without disabilities, we examine the association of eight factors with successful employment outcomes. Using regression tree analysis, five factors emerged as statistically significant predictors of successful employment outcomes for people with disabilities: corporate culture and climate, job characteristics, government support, employer attitudes, and societal attitudes. Key interrelationships between factors include: (1) government support linking with corporate culture and climate; and (2) job characteristics linking with corporate culture and climate. Findings are relevant to organisations and governments to inform policy and practice to improve employment outcomes for people with disabilities.

Since the 1960s sign languages have been identified as natural human languages and conceived of as a key feature of Deaf culture and identity. Eschewing the notion of disability, deaf advocacy organisations have connected the use of sign language to linguistic and cultural rights. Despite the clear preference of deaf advocates, the legal protection of sign languages remains uneven and somewhat difficult to grasp, being situated at the intersection of disability rights and linguistic rights. Few attempts have been made to identify the extent to which sign languages are recognised and enshrined within domestic legal systems. This article aims to propose a novel taxonomy that focuses on the normative conceptualisation of sign language and deaf people in national legislation. Based on a comparative analysis and focusing on European Union Member States, it identifies three main approaches: an explicit ‘minority’ approach—ie the express recognition of deaf persons as a linguistic minority; a more nuanced ‘cultural approach’—which acknowledges sign language as autonomous language and provides for promotional measures; and a ‘disability’ approach—which mandates and/or promotes the use of sign language primarily as an accessibility measure.