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Assessment of quality of life and psychosocial problems in children with Congenital Heart Disease

Published online by Cambridge University Press:  27 January 2025

Meral Bulbul Oztoprak Open the ORCID record for Meral Bulbul Oztoprak [Opens in a new window] ,
Meki Bilici Open the ORCID record for Meki Bilici [Opens in a new window] ,
Tugba Dogac Open the ORCID record for Tugba Dogac [Opens in a new window] ,
Alper Akin Open the ORCID record for Alper Akin [Opens in a new window] ,
Mehmet Ture Open the ORCID record for Mehmet Ture [Opens in a new window] ,
Hasan Balik Open the ORCID record for Hasan Balik [Opens in a new window] ,
Kamil Yilmaz Open the ORCID record for Kamil Yilmaz [Opens in a new window] ,
Omer Satıcı Open the ORCID record for Omer Satıcı [Opens in a new window]  and
Busra Emir Open the ORCID record for Busra Emir [Opens in a new window]
Meral Bulbul Oztoprak*
Affiliation:
Department of Pediatric Health and Diseases, Bismil State Hospital, Diyarbakir, Turkey
Meki Bilici
Affiliation:
Department of Pediatric Cardiology, Dicle University, Faculty of Medicine, Diyarbakir, Turkey
Tugba Dogac
Affiliation:
Department of Child and Adolescent Psychiatry, Malatya Turgut Ozal University, Faculty of Medicine, Malatya, Turkey
Alper Akin
Affiliation:
Department of Child and Adolescent Psychiatry, Malatya Turgut Ozal University, Faculty of Medicine, Malatya, Turkey
Mehmet Ture
Affiliation:
Department of Child and Adolescent Psychiatry, Malatya Turgut Ozal University, Faculty of Medicine, Malatya, Turkey
Hasan Balik
Affiliation:
Department of Pediatric Cardiology, Gazi Yasargil Training and Research Hospital, Diyarbakir, Turkey
Kamil Yilmaz
Affiliation:
Department of Pediatric Health and Diseases, Dicle University, Faculty of Medicine, Diyarbakir, Turkey
Omer Satıcı
Affiliation:
Department of Biostatistics, Dicle University, Faculty of Medicine, Diyarbakir, Turkey
Busra Emir
Affiliation:
Department of Biostatistics, Izmir Katip Celebi University, Faculty of Medicine, Izmir, Turkey
*
Corresponding author: Meral Bulbul Oztoprak; Email: [email protected]
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Abstract

Objective:

Congenital heart disease (CHD) is a condition that can significantly impact health-related quality of life due to the need for long-term follow-up and treatment. The purpose of this study was to analyse the quality of life of children diagnosed with CHD and to assess the relationship between the disease and their physical and mental well-being.

Materials and Methods:

The study involved 180 patients and 180 healthy controls. Both groups were divided into three age categories (5–7 years, 8–12 years, and 13–18 years), with 60 children in each age group. The researchers administered the Pediatric Quality of Life Inventory (PedsQL) to the participants, taking into account their age.

Results:

Comparisons between the patient and control groups showed that the patient group had significantly lower scores than the control group in terms of total quality of life scale score, physical health score, and psychosocial health score of the Pediatric Quality of Life Inventory (p < 0.001, p < 0.001, and p < 0.001). Quality of life was also compared between patients receiving and not receiving medication treatment. Patients receiving medication treatment had lower scores for total quality of life score, physical health score, and psychosocial health score of the Pediatric Quality of Life Inventory compared to the control group (p < 0.001, p = 0.005, and p < 0.001).

Conclusion:

Children with CHD experience a negative impact on their quality of life. Given the extended life expectancy resulting from new treatment options, it is important to monitor these children both physically and psychosocially and to implement activities aimed at improving their quality of life.

Keywords

Congenital heart diseasequality of lifePediatric Quality of Life Inventory
Type
Original Article
Information
Cardiology in the Young , Volume 34 , Issue 11 , November 2024 , pp. 2316 - 2322
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Copyright
© The Author(s), 2025. Published by Cambridge University Press

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Footnotes

a

This study was prepared as Meral Bulbul Oztoprak’s medical speciality thesis at the Department of Pediatrics, Dicle University Faculty of Medicine.

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