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Do caregivers who connect online have better outcomes? A systematic review of online peer-support interventions for caregivers of people with stroke, dementia, traumatic brain injury, Parkinson’s disease and multiple sclerosis

Published online by Cambridge University Press:  15 March 2021

Sarah J. Wallace Open the ORCID record for Sarah J. Wallace [Opens in a new window] ,
Janaki Kothari ,
Anushki Jayasekera ,
Jessica Tointon ,
Toluwalase Baiyewun  and
Kirstine Shrubsole Open the ORCID record for Kirstine Shrubsole [Opens in a new window]
Sarah J. Wallace*
Affiliation:
Queensland Aphasia Research Centre, Australia School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Janaki Kothari
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Anushki Jayasekera
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Jessica Tointon
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Toluwalase Baiyewun
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Kirstine Shrubsole
Affiliation:
Queensland Aphasia Research Centre, Australia School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia School of Health and Human Sciences, Southern Cross University, Bilinga, Australia
*
*Corresponding author. Email: [email protected]
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Abstract

Background and Objectives:

This systematic review aimed to identify and appraise the evidence for online peer-support interventions for caregivers of stroke survivors (with and without aphasia), and people with dementia, traumatic brain injury (TBI), Parkinson’s disease and multiple sclerosis.

Research Design and Methods:

Systematic review conducted in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Five databases were systematically searched up until September 2020: EMBASE, PubMed, CINAHL, Scopus and Web of Science. Two reviewers independently screened titles, abstracts and full-text articles. The methodological quality of included studies was assessed using Physiotherapy Evidence Database (PEDro) and Mixed-Methods Appraisal Tool (MMAT) scales. Interventions were described using the Template for Intervention Description and Replication (TIDieR) checklist.

Results:

A total of 3026 records were identified from database searches. Following screening, 18 studies reporting 17 interventions were included in this review. Most studies (n = 13) reported interventions for caregivers of people with dementia. All studies incorporated an element of peer support as part of the intervention, however, most interventions (n = 15) comprised both psychosocial and educational elements. Statistically significant changes were reported for 11 interventions in one or more of the following domains: caregiver knowledge, mental health, stress, depression, distress, burden, self-efficacy, mastery, helplessness and perceived support. Qualitative outcomes included perceived reductions in stress and increased emotional and informational support.

Discussion and Implications:

Positive changes in caregiver outcomes were identified in response to multi-component online interventions (i.e., peer support in addition to education). Peer support was often poorly described, limiting the conclusions that could be drawn about the intervention components which result in better outcomes. Online interventions may provide an accessible and effective means of supporting caregivers.

Keywords

caregivingsocial supportdementiastrokeInternet
Type
Review
Information
Brain Impairment , Volume 22 , Issue 3 , December 2021 , pp. 233 - 259
Copyright
© The Author(s), 2021. Published by Cambridge University Press on behalf of Australasian Society for the Study of Brain Impairment

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